It's been a roller coaster the past few days, like someone posted how many times have we used that term "roller coaster" on the blog? .....I wish I had a dollar for every time. Jerry was extremely sick on Friday, he felt OK on Saturday, Sunday he felt pretty good and enjoyed himself at the pancake breakfast, Monday he was sick again. By Tuesday he was ready to throw in the towel. It was a very difficult week physically and emotionally for Jerry. Again having to come to terms with his current reality brought him to edge of giving up. We decided to cancel PT and OT for Tuesday and head to the Doctor, that turned out to be a very good decision. Dr. Quinn is so wonderful, he squeezed us into his already busy schedule or maybe I should give his staff that credit, his staff made sure we got in. Dr. Quinn was so patient, he spent about an hour with us talking with Jerry about his emotions, trouble shooting the nausea and dealing with the multitude of issues we presented. Dr. Quinn's talk really helped Jerry to get focused again and to stay the course. The doc ordered an ultrasound, the next set of tests to try to determine the root cause of the nausea. If the results don't find the root then the next test will be some kind of gastrosomethingorother study. We tried the homeopathic wristbands, and also mint syrup, both didn't help. Someone mentioned on the blog awhile back about some nausea serum with B12 but couldn't remember the ingredients, however they thought B vitamins helped with nausea. So this probably isn't the best thing but Red Bull the energy drink is loaded with B6 and B12, we tried it yesterday and it reduced the level of nausea from about a 4 to a 2. We tried it again today and again the same, maybe coincidence, maybe something to it, we'll see.
Jerry has his friends Katie and Leigh visiting from Florida, we picked them up from the airport today. (Sorry Mary, thanks for the rain check, my head was in a fog when I said Friday would work out fine). We picked the girls up from the airport about 30 minutes late, I made a bad first impression. They flew in at 11:30 and you know how that goes trying to get out of the house by 10:30, oh well not the end of the world. Jerry took PT off today with blessings from his therapist and will be taking SCI-FIT off on Monday. He needs a break and spending time with the girls will be a great boost for him. Jerry was excited to plan out an itinerary, hopefully it doesn't rain tomorrow because they are supposed to go to San Francisco, Josh is supposed to give them the tour. Saturday they are supposed to go to the Boardwalk, the Big Foot Museum, the wharf, and Taquaria Maranos. Sunday they are supposed to go to Monterey Bay Aquarium, Monterey wharf and 17 mile drive. Monday they're going to drive up the coast to Davenport and maybe go see a movie and have a chill day. Tuesday they fly home at 6:00 am, it's going to be a busy five days. Once the kids head out for the day I'll have quite a bit of free time, I'm not sure I know what to do with myself anymore, I'll figure it out :-).
More Later...
Katie Mac
9 comments:
What a great weekend for Jerry. Should really boost his spirits with his college friends plus showing our beautiful home always makes me feel better.
Katie take a huge breathe and relax for at least a few minutes.
Thanks again for sharing your lives with all of us. You are always in our prayers!
Wow, Katie, ..you guys have such a high work level! It was fun running electric wire in Jerry's new room with you on Saturday, ..but that seems like only one-twentieth of the things your family handles every day!
Yes, God is love, ..and you are making God proud!
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Here's 200 prayers that Jerry gets relief from the nausea, ..I wish I new a solution!
Jerry is still strong, down in his heart, he'll get through this, he'll have brighter days again soon!
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In the meantime, ..I'd love to come help Dennis sheetrock, ..so I'll just stay in touch, okay?
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Best wishes now, then, and always!
Hi MacCallesters,
Just wanted to drop a quick note and suggest acupuncture for Jerrys health. It has helped me in the past and hope and pray it might be a solution for Jerry.
Guess what Katie,
I just talked with one of my staff whose husband is at Stanford post brain surgery. He is very nauseated and the doctor told her that this was caused by a low sodium level (131 but should be 135?)
Anyway, thought maybe this is an issue that might not have been addressed yet. A simple blood test may be in order for Jerry.
Hey Jerry,
Have a blast with the girls and try to stay dry today.
Lot's of love,
Gretchen
God Bless you all and we will be praying throughout the weekend.
Hi Katie,
Whatcha doin;'?
;-)
Hope Jerry and company have a GREAT day today. It's encouraging to read that Red Bull may be helpful in curbing the nausea. Here's hopin'!
- Tara
This is from the person who suggested the wrist bands and vitamin b6 for nausea. That medicine I took in the 80s was called Bendectin - here's a blurb from Wiki
Bendectin (known as Debendox in the UK and Diclectin in Canada) is a mixture of pyridoxine (Vitamin B6) and doxylamine prescribed to treat nausea and vomiting associated with morning sickness. It was voluntarily removed from the market in 1983 by its manufacturer, Merrell Dow Pharmaceuticals, following numerous lawsuits alleging that it caused birth defects, although an FDA panel concluded that no association between Bendectin and birth defects had been demonstrated.[1]
Sorry the wrist bands didn't work - did you get the kind that you can actually adjust the pressure? The old-style ones were unable to be adjusted. Anyway. I just remember how I felt with that hovering (or worse) nausea. I feel for Jerry!
Gretchen, interesting comment re: sodium.
Susan Shisler
Hope you're taking a good breather Katie. You've been in my prayers today especially. Praying for Jerry's spirits as well. Hope this weekend of fun will go miles and miles in the spirit lifting business.
keep giving love, that's what you do with yourself. Trust in the Lord or God, let Him love you, let Him love through you.
You and your family are full of love, and it is a blessing for all who know. Hold your head up in the Lord, and keep loving like you do.
thank you
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